Table 1: Some of the information sheets handed out.

ADD/ADHD (1st version 1,638 2nd version 1,000 and 3rd version 194)

2,832

Headaches

1,634

Psychomotor delay and neurodevelopmental disorders

1,262

Epilepsy (1st version 766, 2nd version 307)

1,073

Cerebral palsy

271

Tics

169

NF1 (1st version 72, 2nd version 64)

136

Absence epilepsy (1st version 43, 2nd version 22)

65

Tuberous sclerosis (1st version 18, 2nd version 16)

34

Duchenne muscular dystrophy (1st version 13, 2nd version 4)

17

Fragile-X

11

Prader Willi syndrome

2

This table shows the number of the information sheets given out up to 19-6-2017. We began to compile these information sheets in 4-2011 with the aim of providing comprehensive, reliable information, agreed upon by specialists in each pathology. The information sheets provide parents, healthcare and early care professionals with a “roadmap”, encouraging joint monitoring of children by pediatricians, parents and all others responsible. Some of the information sheets have been revised on one or more occasions, as indicated in the table.